I find myself in the cancelling conundrum all too often. My close friends and family know of my condition, although some do not know of the extent of my disability. How to tell them why I need to cancel without scaring them? Or making them feel like they need to visit and take care of me? Being honest is important, but sometimes I don't want to reveal all of my personal information (TMI much?). I also don't want to trivialize what is happening. I feel like I'm am constantly doing a delicate balancing act to keep people informed, yet protected. And that state of being is lonely.
My balancing act applies not only with the making and breaking of plans; I do this for all aspects of sharing my life with EDS. I will always tell people enough so that our relationship can function; however, I keep much of what I'm going through to myself. Even my husband does not know 100%--I will always withhold some information. I do this in order to protect him and his mental state (he really doesn't need to know how many times things dislocated today) and to keep my independence (if he did know everything, he would be afraid to let me do anything).
This balancing act probably sounds insane to the majority of people. But, I expect for those with chronic illness, it will sound familiar. I would love to hear your thoughts in the comments.